Welcome note

When my husband and I set out to find and take pictures of wheelchair accessible waterfalls in every U.S. state, we were excited about the challenge. We gave ourselves no time limit to accomplish our feat; however, we had one mutually agreed upon rule that dictated how long we would stay in any given area. That rule was to never shiver again. Needless to say, adhering to this rule presented a new challenge. The new challenge was to find a waterfall that was actually flowing. Visiting mid-west and eastern states during months that prevented us from shivering are the same months that are hot enough to dry up streams; hence, little or no water flow for waterfalls. The natural scenery and picturesque landscapes warrant a second visit in the early spring right after the snow melts.

Bob and Jan

Bob and Jan
Christmas Eve

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Friday, September 16, 2011

What do I do while standing?

Week 5: I'm not sure if I'm at a stand-still or if I'm not going to progress any further. I'm a positive person. I vote for the former...stand-still. I was a little slow this week, and my legs are aching a lot.

One thought I do have frequently is, "When I can walk/stand for long periods of time, what the hell do you do?" I've sat for so long, I forget what to do when I stand. For six years, I've sat at my computer; that's all I remember what to do. I do a lot of thinking stuff; designing stuff; teaching online stuff. Now, how do I do that standing?

Thursday, September 8, 2011

Week Four

Today is the end of week four after my surgery to improve my blood flow in my jugular veins. Before my surgery, the doctor told me that the increased blood flow will alleviate my cold hands and feet. Also, my MS is affected by heat and cold. I completely melt (I'm unable to lift my body parts) in extreme heat, and shiver uncontrollably in the cold. The doctor said that my body is unable to sweat, which is the human's form of air conditioning. He said this will change after the surgery.
Boy was he right. I sweat like crazy, which is a good thing, because Oregon's dry desert heat used to incapacitate me to the point that I haven't been outside much during the summer months in years. My skin is so white, it glares on the eyes brightly. The glare makes it hard to see :-)
Muscle building still is not progressing as fast as I want. I'll hang in there though.

Thursday, September 1, 2011

Today is week three...

Looking at my week from the outside in as a therapist, I can say things are fine; however, most of you know me as an athlete, and I still have that athlete mentality. Gaining strength should be easy and improvement should be quick. But, it's not going quite that quickly.
Walking is tiring! :-/ I not only have been in a wheelchair for the majority of six years, I've also had an ankle brace on my leg that supported my foot from dragging on the ground, which would make me trip and fall. I took the brace off on Saturday and haven't put it back on, even though, I really really wanted to, I didn't. I figured the only way to strengthen my ankle and calf muscle is to give them no support.
I started doing laps in my house. :-) I can do three full laps in 15 minutes with the walker. Bob did ten full laps in five. I'll get there.