Welcome note

When my husband and I set out to find and take pictures of wheelchair accessible waterfalls in every U.S. state, we were excited about the challenge. We gave ourselves no time limit to accomplish our feat; however, we had one mutually agreed upon rule that dictated how long we would stay in any given area. That rule was to never shiver again. Needless to say, adhering to this rule presented a new challenge. The new challenge was to find a waterfall that was actually flowing. Visiting mid-west and eastern states during months that prevented us from shivering are the same months that are hot enough to dry up streams; hence, little or no water flow for waterfalls. The natural scenery and picturesque landscapes warrant a second visit in the early spring right after the snow melts.

Bob and Jan

Bob and Jan
Christmas Eve

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Wednesday, June 24, 2009

do ta-do ta-do

Bob is good today. He is listening to music all day. Physical Therapy tuckers him out. When this is all said and done, Bob will be the poster child for health.

Today is a high stress day for me. It was two weeks ago, tonight, that he went back to the ICU for the second time. Two weeks ago, he was moved from ICU to 10K on a Monday; admitted to room 8, had physical therapy on a Tuesday, slept on Wednesday, and back to the ICU at 2am. And now, he was moved from ICU on Monday, admitted to room 8, had physical therapy on tuesday and wednesday...I'm sleeping here tonight!

I feel, this time, he looks better than before. During physical therapy today, he was mouthing words a mile a minute. His trach is preventing him from making any sound, but that will change soon. I told him he can ride his Harley tomorrow. He just shook his head and had a look of disappointment. The physical therapist explained to him what happened to him. He seemed to undertstand. He had a look of "Oh shit!"

He's lost about 70 pounds. I guess, he can vouch for the liquid diet; but, I'm sure a big steak would taste good right now.

If I haven't said it already, thank you everyone for your prayers, love, and support. Even if I did, I can't say it enough. Thank you, thank you, thank you.
email: jiachini@msn.com
stroke info: www.strokeassociation.org
brain info: http://www.birf.info/home/bi-tools/tests/lcfs.html
OHSU: 3181 SW Sam Jackson, Portland, OR 97239 10K room 8

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